PRIVACY POLICY

This privacy policy sets out how H-abc Foundation UK uses and protects anyinformation that you give us when you use this website.

 

H-abc Foundation UK is committed to ensuring that your privacy is protected, andabides by the Data Protection Act 1998, and by GDPR 2018. Should we ask you toprovide certain information by which you can be identified when using this website,you can be assured that it will only be used in accordance with this privacystatement.

  1. What we collect–personal data

H-abc Foundation UK gathers, processes and retains data for use as a registeredcharity. H-abc Foundation UK also retains and processes data thatis necessary forthe administrative purposes of its own internal governance, and that of the patientregistry.We collect data in a number of circumstances, such as when:

  • You fill out a form on this website, or you fill out forms at a H-abcFoundation UKevent.

  • You interact with us online, including on Facebook, Twitter, Instagram, onour website.

  • You donate or volunteer with H-abc Foundation UK

Some of this includes data that you don’t share with us directly, but that is sharedwith us by other organisations with your permission, and we only process this dataif we have your consent to do so. This might happen if you have used independentfundraising platforms such as JustGiving, and we may collect data such as:

  • Name and job title

  • Contact information including email address and IP address

  • Demographic information such as postcode, preferences and interests

  • Other information relevant to supporter surveys

We may also collect data from publicly available sources such as Companies House,the Charity Commissionor Land Registry. This information will be used tounderstand your philanthropic interests and activities, enabling us to understandhow likely you are to support H-abc Foundation UK’s work. This helps us understandour supporters better and helps us makeappropriate request for your support andensures that we are making best use of our time and resources.

2. What we do with the information we gather

We require this information to understand the needs of our supporters and offamilies of people with H-abc so that we can provide a better service and inparticular for the following reasons:

  • Internal record keeping

  • We may use the information to improve our services

  • We may periodically send promotional emails about new campaigns or otherinformation which we think you may find interesting using the email addresswhich you have provided

  • From time to time, we may also use your information to contact you forsurvey purposes. We may contact you by email, phone, fax or mail

  • We may process your data to customise the website or for use in emailcommunications we have with you. Some of these processes are automated.However, processing is conducted fairly, with useof robust statisticalmethods, and is tested thoroughly to minimise risks of mistakes orinaccuracies. Data is stored securely throughout all this processing

  • As part of our day-to-day work, we may engage service providers whooperate on our behalf. In these circumstances, they will only have access tothe personal information they need to fulfil that service and will only usethat information strictly for the purposes for which they have beeninstructed by us

Examples of service providers include paymentproviders who processes donationsfor us, or a mailing service who send and record e-communications on our behalf.Any data they pass to us is done with your permission.

3. Security

We are committed to ensuring that your information is secure. In order to preventunauthorised access or disclosure, we have put in place suitable physical, electronicand managerial procedures to safeguard and secure the information we collectonline. You can contact H-abc Foundation UK’s Data Protection Officer atamy@habcfoundationuk.co.ukregarding any concerns or queries you have regardingdata security.

4. Links to other websites

Our website may contain links to other websites of interest. However, once youhave used these links to leave our site, you should note that we do not have anycontrol over that other website. Therefore, we cannot be responsible for theprotection and privacy of any information which you provide whilst visiting suchsites and such sites are not governed by this privacy statement. You shouldexercise caution and look at the privacy statement applicable to the website inquestion.

5. Data Retention

H-abc Foundation UK will only retain data for as long as it is required to meet thepurposes set out in this privacy policy. Different purposes will have differentretention periods. H-abc Foundation UK will then delete these records securely.

6. Controlling your personal information

You may request details of personal information which we hold about you under theData Protection Act 1998 and under GDPR regulations. In particular, you have thefollowing rights with regard to the data we hold on you:

  • The right to be informed–detailed in this privacy policy, as to the natureand uses of your data, where and how it is held, and how it is used.

  • The right of access–you have the right to obtain from H-abc Foundation UKinformation regarding whether your data is being processed, access to yourpersonal data, and other supplementary information.

  • The right to rectification–if any of the data we hold on you is inaccurate orincomplete, we will rectify and amend where necessary.

  • The right to erasure–if you no longer wish for H-abc Foundation UK to holdor process your data, you may request for us to erase your records.

  • The right to restrict processing–you may request that we no longer processyour data.

  • The right to data portability–by submitting a subject access request toamy@habcfoundationuk.co.uk.

  • The right to object–if you object to your data being collected or used, wewill stop processing this data

7. Cookies & usage tracking

A cookie is a small file of letters and numbers that is downloaded on to yourcomputer when you visit a website. Cookies are used by many websites and can do anumber of things, eg remembering your preferences, recording what you have putin your shopping basket, and counting the number of people looking at a website.Where cookies are used to collect personal data, we list these purposes in section 1above, along with other personal data that we collect. However, we also use somecookies that do not collect personal information but that do help us collectanonymous information about how people use our website. We use Google Analyticsfor this purpose. Google Analytics generates statistical and other informationabout website usage by means of cookies, which are stored on users' computers.The information collected by Google Analytics about usage of our website is notpersonally identifiable. The data is collected anonymously, stored by Google and

used by us to create reports about website usage. Google's privacy policy isavailable athttp://www.google.com/privacypolicy.html

8. Modifications

We may modify this Privacy Policy from time to time and will publish themostcurrent version on our website. If a modification meaningfully reduces your rights,we'll notify people whose personal data we hold and is affected.

9. How to contact us

If you have any questions about our Privacy Policy, the data we hold on you, or youwould like to exercise one of your Data Protection rights, please do not hesitate tocontact us

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H-ABC FOUNDATION UK

Raising funds and awareness to help find a cure for H-ABC. 

Registered charity number 1190390

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