Being a parent of a child suffering from Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum (H-ABC), a condition caused by...

ICT talks with Dan Williams from SynaptixBio about the rare genetic disease group of leukodystrophies, how they affect the white matter...

Oxford company working on drug to treat rare brain disease - BBC News

Oxford biotech firm secures £13.2m to develop first treatment for rare, incurable, deadly disease. (synaptixbio.com)

In 2021, the H-ABC Foundation UK began working on two exciting projects involving Virtual Reality for H-ABC. IMAGINATION VR: IMAGINATION...

Time running out for 'beautiful' Cotswold teen needing medical treatment for genetic condition - Gloucestershire Live

More exciting news for rare disease communities. The article below explains the new partnership to help improve and accelerate the...

Very exciting news for the H-abc community. Biotech Synaptix has launched and are working hard to develop ASO gene therapy for H-abc and...

The amazing Darren Hardy is at it again! This time he pulled a car (yes a car!!) for 50km! Darren is such an amazing supporter of H-abc...

Darren Hardy, who ran 5 marathons in 50 hours for H-abc Foundation UK, has produced a video about his challenge. Have a watch, its a...

Ex Solider Darren Hardy is running 5 marathons in 50 hours to raise money for H-abc Foundation UK after being inspired by Aggie, 12, who...

One of our H-abc families had the privilege of meeting the Queen of Spain, here is what mum, Laura, had to say: On February 11, we had...

3 of the H-abc children and their mum's were interviewed by BBC Breakfast to help raise awareness of the disease and the charity we have...

ULF organised a Leukodystrophy conference this year and Dr Vanderver presented and update on H-abc, click below to view the presentation.

We have the amazing opportunity of having access to Ben's Twitter account to help publicise our charity. We will be tweeting videos and...

The Sun Online published a great article about H-abc and how we are desperately trying to find a cure for our kids. have a read here.....

After lots of paperwork and waiting we now have our Charity Commission number! H-abc Foundation UK 1190390 is a charity registered in...

Some of our parents and US affiliated charity Foundation to Fight H-abc have produced this great Youtube video. It features some of our...

£960 has been raised from a local art exhibition at the Exhibitionist in Ware, Hertfordshire.Thanks for everyone that came and made it...