Darren Hardy, who ran 5 marathons in 50 hours for H-abc Foundation UK, has produced a video about his challenge. Have a watch, its a...

Ex Solider Darren Hardy is running 5 marathons in 50 hours to raise money for H-abc Foundation UK after being inspired by Aggie, 12, who...

One of our H-abc families had the privilege of meeting the Queen of Spain, here is what mum, Laura, had to say: On February 11, we had...

3 of the H-abc children and their mum's were interviewed by BBC Breakfast to help raise awareness of the disease and the charity we have...

ULF organised a Leukodystrophy conference this year and Dr Vanderver presented and update on H-abc, click below to view the presentation.

We have the amazing opportunity of having access to Ben's Twitter account to help publicise our charity. We will be tweeting videos and...

The Sun Online published a great article about H-abc and how we are desperately trying to find a cure for our kids. have a read here.....

After lots of paperwork and waiting we now have our Charity Commission number! H-abc Foundation UK 1190390 is a charity registered in...

Some of our parents and US affiliated charity Foundation to Fight H-abc have produced this great Youtube video. It features some of our...

£960 has been raised from a local art exhibition at the Exhibitionist in Ware, Hertfordshire.Thanks for everyone that came and made it...