habcfoundationukMay 162 minVirtual Reality for H-abcIn 2021, the H-ABC Foundation UK began working on two exciting projects involving Virtual Reality for H-ABC. IMAGINATION VR: IMAGINATION...
habcfoundationukMay 161 minAnother article about one of our H-abc kids!Time running out for 'beautiful' Cotswold teen needing medical treatment for genetic condition - Gloucestershire Live
habcfoundationukOct 27, 20211 minNIH, FDA and 15 organisations join forces to increase effective gene therapies for rare diseases. More exciting news for rare disease communities. The article below explains the new partnership to help improve and accelerate the...
habcfoundationukOct 14, 20211 minNew Biotech, Synaptix, launched to develop treatment for Tubb4a H-abc!Very exciting news for the H-abc community. Biotech Synaptix has launched and are working hard to develop ASO gene therapy for H-abc and...
habcfoundationukSep 24, 20211 minDarren Hardy the Machine!The amazing Darren Hardy is at it again! This time he pulled a car (yes a car!!) for 50km! Darren is such an amazing supporter of H-abc...
habcfoundationukJul 16, 20211 min5 Marathons in 50 Hours videoDarren Hardy, who ran 5 marathons in 50 hours for H-abc Foundation UK, has produced a video about his challenge. Have a watch, its a...
habcfoundationukApr 10, 20211 min5 Marathons in 50 Hours!Ex Solider Darren Hardy is running 5 marathons in 50 hours to raise money for H-abc Foundation UK after being inspired by Aggie, 12, who...
habcfoundationukMar 5, 20211 minH-abc family meeting the Queen of Spain!One of our H-abc families had the privilege of meeting the Queen of Spain, here is what mum, Laura, had to say: On February 11, we had...
habcfoundationukNov 18, 20201 minBBC Breakfast news interviews H-abc families3 of the H-abc children and their mum's were interviewed by BBC Breakfast to help raise awareness of the disease and the charity we have...
habcfoundationukOct 6, 20201 minULF H-abc Conference presented by Dr VanderverULF organised a Leukodystrophy conference this year and Dr Vanderver presented and update on H-abc, click below to view the presentation.
habcfoundationukAug 17, 20201 minBen Fogle has given us his Twitter account for a week!We have the amazing opportunity of having access to Ben's Twitter account to help publicise our charity. We will be tweeting videos and...
habcfoundationukAug 11, 20201 minNews article in The Sun online!The Sun Online published a great article about H-abc and how we are desperately trying to find a cure for our kids. have a read here.....
habcfoundationukAug 7, 20201 minWe now have our Charity Commission number!After lots of paperwork and waiting we now have our Charity Commission number! H-abc Foundation UK 1190390 is a charity registered in...
Afaq JavedJul 18, 20201 minOur new Youtube video!Some of our parents and US affiliated charity Foundation to Fight H-abc have produced this great Youtube video. It features some of our...
Afaq JavedJul 18, 20201 minArt Exhibition £960 has been raised from a local art exhibition at the Exhibitionist in Ware, Hertfordshire.Thanks for everyone that came and made it...