One of our H-abc families had the privilege of meeting the Queen of Spain, here is what mum, Laura, had to say:
On February 11, we had the chance to meet with Queen Letizia of Spain at the Zarzuela Palace. It was a very special moment for our daughter Carolina, for over an hour we shared our experience with her, it was a good opportunity to give visibility to children affected by H-ABC disease. The Queen has been particularly sensitive and is committed to supporting any initiative that we organise.
