Sofia is the happiest and most resilient 9 year old you’ll ever meet. She was 3.5 when she was diagnosed. Nothing ever gets her down. Whatever she didn’t have she made up for in her ability to adapt to all situations thrown her way.
Sofia has been extremely resourceful since she was a little girl, making do with what she’s got and find short cuts to get stuff done.
She’s very lucky to be in at Caversham Primary- a school environment where she has loyal friends and teachers who truly look after her. She’s also got a wicked sense of humour and loves playing pranks on her friends at school.
Over the years, Sofia’s condition has deteriorated. She lost her voice momentarily 2 winters ago which never recovered. We miss her melodic singing voice.
We’re all hoping that it will return one day with a treatment in the horizon